Everyone MUST Get Involved
Please help spread the word. This is your opportunity to have a direct affect on the quality of life for at least 50,000 known people in this country alone, and countless others throughout the world. (Yes, this post will rarely be updated, but the information in this blog is still relevant and WE NEED YOUR HELP. Thanks!)
We with EDS are impacted every moment of our lives and can benefit from your help.
Download this Awareness Brochure: http://www.ednf.org/dmdocuments/eds-brochure-high-res.pdf
Use this with the Sports Poster downloadable here: http://www.ednf.org/images/stories/EDNF_Kids_and_Teens/Sports_Poster.pdf to educate yourself, your doctors, your children's schools, your gym and community centers about EDS and how it is diagnosed. (Every facility, trainer, doctor, school, teacher you give these materials to creates more EDS-aware resources for those affected by EDS. Share your newly created resources on www.ednf.org.)
The only thing "rare" about this disorder is the amount of people who are properly diagnosed within their lifetime - awareness can help change this.